Sunday, June 30, 2013


Yesterday the ICA held a Patient Forum on IC, FREE, for all IC patients and their families, friends or loved ones in Philadelphia, PA. For those of us that could not travel for whatever reason, the ICA made all the sessions available via web cast so we could still participate and receive the information. Online participants were still able to submit questions via online and that just added to the feeling of participating in the event, in my opinion. Videos of each session will also be available now on the ICA's website so if you missed it, you still can view each session!

As much as many of us wish the ICA had the ability to hold more of these Patient Forums all over the country near where each of us lives, I know they don't have the financial resources to do that. I know if they did have that kind of money, they'd be happy to attempt such a task. But just to get one of these events off the ground is a huge undertaking; lining up a location, getting sponsors, getting all those medical & scientific experts to speak to us, providing handouts and informational materials, is a huge undertaking. And I think they did an amazing job!

I am so grateful that the ICA is there doing this type of educational work for IC patients and health care providers everywhere, helping to raise awareness, lobbying Capitol Hill (which they just did recently) for research funding, maintaining the ICA website, Facebook page and Twitter page! And so much more!

I sat in my comfy chair, able to watch each and every session of the Patient Forum yesterday and felt like I was there. It was chock full of excellent information, research updates and opportunity for Q & A from all participants. 

To the ICA, I say "THANK YOU". If anyone who participated in this event, either in person, or via webcast, felt this was a worthwhile event, wishes the ICA could do more of them, then I urge you (if you are not already) to support the ICA by becoming a dues paying member. I am a member and it is one thing I save my pennies for all year long so that I can renew my membership each year. This is how the ICA is able to keep helping those of us in the ICA community. We need those of us taking advantage of the excellent services they provide to show our support and help keep them "in business" by becoming members. 

THANK YOU ICA for all you do! I know I am grateful for all you do for those of us suffering with this disease!

"Kind and Generous - Thank You"
Natalie Merchant

This song really speaks to me about my
personal gratitude for the ICA and everyone 
who has helped me in my struggle with IC!


  1. We are so glad you enjoyed the Forum, Catherine! Thank you for your dedication to the IC community, as you do so much to help others with their IC journey. We also appreciate your support of the ICA. You are truly a wonderful advocate for this condition!

    --Anita from ICA

    1. Thanks Anita! I truly appreciate your commenting on my Blog! You should be sure to check out today's Blog Post too!

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