Then two months ago, much to my shock and dismay, things got worse as those who follow my Blog know. I was hit with what has turned out to be, as far as we can determine, Obstructive Lung Disease/Adult Onset Asthma. I got hit so suddenly and so hard by this, the Pulmonologist was literally scratching his head a few times at how bad off I was and how poorly I've been responding to the treatment plan. This has literally been a game changer and taken a toll that I would not have thought possible!
Things actually began to go backwards in the past week or so and I was deteriorating back to the level that sent me to the hospital to begin with. I was supposed to see the Pulmonologist on this past Thursday and desperately needed to do so. Then we got hit with a huge blizzard and the doctor's office closed and I was unable to see him. I was on the phone with the office staff, in tears, telling them how desperate I was to see him and how bad things had gotten. They didn't hesitate. They said they would have the doctor call me and within less than an hour, he did. We talked and he made some changes to the treatment plan to try until I can see him in a few weeks. In addition, at the suggestion of both him and my Primary Care, I have an appointment scheduled for this week to see an Allergist. So we are doing what we can to try to find some answers and make some improvements to my condition.
This is really hard. It has taken a toll on me in so many ways. I will admit to more than a few meltdowns since this all began. Luckily for me, I have an appointment with my psychologist in a few days and that's a good thing. I just hope I can talk and that my shortness of breath doesn't make it an exercise in futility. The more I talk, the worse the shortness of breath gets and that sets off the coughing spasms and everything goes rapidly downhill from there.
This has been hard. But I am really trying to cope. I'm not doing as well as I would like. But I am trying. I want to think positively and know that we will find answers. But with this on top of my IC and everything else is really making it a bigger challenge than I've ever faced. I would not have thought that possible. With all I have been through with my IC, having to sell my home and move in with my parents, go on Disability and lose my independence - that was all extremely hard. I have been in therapy for 6 years learning to cope with how to live with chronic disease. Now I have to learn how to deal with even more.
It's hard. But I am trying. It's up and down and harder than anything I've had to deal with. But I am trying. I am so blessed with a wonderful family that loves and supports me and they have rallied around me through all this. I do not take it for granted and I could not do any of this without each an every one of them.
So on this Sunday that I usually devote to an Inspirational Quote for the day, as a way to help me, as well as my readers, try to seek a positive place, I will still include an Inspirational Quote that I found that speaks to me. This is definitely hard, but I AM TRYING. I will keep trying.