Monday, February 3, 2014


I see so many posts all the time about how we need more research to better understand IC, find better treatments and even, one day a cure.

But, I am so excited to see so many Studies happening more and more often. The ICA often posts notices about Studies that are looking for patients as well as Grant Awards looking for researchers to submit proposals to study IC. 

This should all be taken as an exciting time for those of us struggling with IC. More studies and more research grants means more opportunities to unlock the mysteries of IC. I know a lot of you often want to help everyone in the IC Community by participating in studies when you hear of them and I commend anyone who does so! You are true heroes to participate in a study where you have no idea if it well help you or not! Patients who volunteer to participate in studies deserve our thanks and deep gratitude for wanting to do what they can to help us all!

I often read posts by patients who are frustrated because they don't qualify or live close enough to participate in a study. But don't be frustrated. I thank everyone who wants to participate in a study but if you can't participate in the study, no need to be disappointed or upset. The study will get enough participants; they always do. The work will go on, so even if you can't participate, I encourage everyone to just be excited whenever you see a notice about a study. If you want to see if you can participate, that's great. But if you don't qualify, the study will still go on and we will one day learn the results and, hopefully, unlock whatever mystery that study was investigating.

Recently, the ICA posted this link to a study; a clinical trial aimed at easing bladder pain caused by interstitial cystitis (also known as painful bladder syndrome) is now underway. Learn more about how you can get involved by visiting:

For anyone that is interested in the many studies be conducted on IC, here's a link to the ICA website page on IC Research:

One of the other important studies that is well underway is the MAPP (Multidisciplinary Approach to the Study of Chronic Pelvic Pain). This is a significant study and here's a link where you can read about the latest on this important study.

I could go on, but just to see so much research activity is so encouraging to me. The more studies the better. There is so much to learn about IC and I am encouraged by the work the ICA is doing to lobby Congress for research funding and to see so many studies seeking volunteers to study IC! 

The ICA Lobbying on Capitol Hill

To anyone who is or has participated in an IC study, I thank you on behalf of IC patients everywhere. This is how we will discover and unlock the mysteries of IC! The answer is out there and all these studies give me hope for our future!

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