Of course I opened it quickly and there it was - in writing - really real:
"This letter is to officially inform you that on 6/10/2014 you were placed on the UNOS (United Network for Organ Sharing) lung transplant waiting list."
There was a lot more in the letter but seeing those words, in writing on paper made it so much more REAL! I have been working, fighting, and waiting for so long, to see it in writing made it really sink in. This is really real! I'm on the list!
I can't believe it's true. No one could diagnose me. No one knows why I have this awful disease. The first transplant hospital denied me. But with the help of my doctor, I kept fighting. It's taken so much to get here I almost can't believe it's real. It's surreal. I can't believe this is my life. It's interesting how we adjust. You have a "new normal" and learn to live with that.
I'm going to learn more about what my "Lung Allocation Score" means at the second Lung Transplant Education Class next week. I'll learn more about Accepting the Organ, Medications, and so much more. Then I'll have two different Support Groups to attend. So much to learn. They really put you through your paces.
But for now, it's REALLY REAL! WOW!